Bilateral Ectrodactyly
Travis Young
Description
Collection
Title:
Bilateral Ectrodactyly
Creator:
Travis Young
Date:
9/29/2020
Text:
Hello list,
I have a 19 y/o patient who’s presents with bilateral Ectrodactyly. She hasn’t really used any device in the past, besides some adaptive sports equipment.
She is in the process of trying to learn to play the Clarinet, Flute, and wants to learn sign language.
All seem to be very large asks considering her presentation. Essentially she has her “thumb” and “5th phalange” bilaterally. None of the fingers have DIP or IP joints. I personally think the clarinet and sign language is out of the question and but think the flute may be obtainable.
I am wondering if anyone has attempted anything like this for this type of presentation or if you know of someone that has and can point me in the right direction.
Thanks for your help in advance.
I have pictures and videos with patient approval for collaboration purposes as well.
Travis A. Young, CPO
OPAF Treasurer
Advanced Prosthetics
1247 E Alluvial Ave, Ste 103
Fresno, California 93720
Office: 559-298-0321 ext114
Fax: 559-298-7164
Cell: 478-438-3014
<URL Redacted>
___________________________________________________
Orthotic and Prosthetic Activities Foundation (OPAF)
Temporary Address:
6497 N Haslam Ave
Fresno, Ca 93711
Cell: 478-538-3014
<URL Redacted>
Confidentiality Notice: The information contained in this transmission may contain d and confidential information, including patient information protected by federal and state privacy laws. It is intended only for the use of the person(s) named above. If you are not the intended recipient, you are hereby notified that any review, dissemination, distribution, or duplication of this communication is strictly prohibited. If you are not the intended recipient, please contact the sender by reply email and destroy all copies of the original message.
I have a 19 y/o patient who’s presents with bilateral Ectrodactyly. She hasn’t really used any device in the past, besides some adaptive sports equipment.
She is in the process of trying to learn to play the Clarinet, Flute, and wants to learn sign language.
All seem to be very large asks considering her presentation. Essentially she has her “thumb” and “5th phalange” bilaterally. None of the fingers have DIP or IP joints. I personally think the clarinet and sign language is out of the question and but think the flute may be obtainable.
I am wondering if anyone has attempted anything like this for this type of presentation or if you know of someone that has and can point me in the right direction.
Thanks for your help in advance.
I have pictures and videos with patient approval for collaboration purposes as well.
Travis A. Young, CPO
OPAF Treasurer
Advanced Prosthetics
1247 E Alluvial Ave, Ste 103
Fresno, California 93720
Office: 559-298-0321 ext114
Fax: 559-298-7164
Cell: 478-438-3014
<URL Redacted>
___________________________________________________
Orthotic and Prosthetic Activities Foundation (OPAF)
Temporary Address:
6497 N Haslam Ave
Fresno, Ca 93711
Cell: 478-538-3014
<URL Redacted>
Confidentiality Notice: The information contained in this transmission may contain d and confidential information, including patient information protected by federal and state privacy laws. It is intended only for the use of the person(s) named above. If you are not the intended recipient, you are hereby notified that any review, dissemination, distribution, or duplication of this communication is strictly prohibited. If you are not the intended recipient, please contact the sender by reply email and destroy all copies of the original message.
Citation
Travis Young, “Bilateral Ectrodactyly,” Digital Resource Foundation for Orthotics and Prosthetics, accessed November 2, 2024, https://library.drfop.org/items/show/255200.
