Amputee education summaries

Milburn, Lee

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Amputee education summaries

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Milburn, Lee

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Dear List Members,

Below are summaries of the responses from my previous post to the list regarding amputee educational materials currently distributed to new amputees during their rehabilitation.

Thank you to all who provided me with information it was much appreciated.

Regards,

Lee Milburn
Honour Student
National Centre for Prosthetics and Orthotics
La Trobe University
Melbourne, Australia



We've got a little handbook that we give to amputees describing the
            various
            stages of prosthetic management. From prescription to care and cleaning
            of
            the prosthesis itself. It's very brief, but I hope it might be useful.

Daryl Lim
            Prosthetist/ Orthotist
            Tan Tock Seng Hospital

_______________________________________________________________________

            I think what I have say and share at my web site will be of interest to
            you
            and your study. It comes from over 35 years as a prosthetist.

            Al Pike, CP
            Amputee Resource Foundation of America, Inc.
             <URL Redacted>

________________________________________________________________________

 Many amputees recieve an education from other amputees by subscribing
             to one of the amputee listservs. I moderate AMP-L and University
             of Washington. Happy to send you info about it.

             Wayne Renardson

________________________________________________________________________

Have a look at www.rohcg.on.ca/mobile/present.html . I don't have a
             summary of our Write-Once Publish-Everywhere principle for
             producing educational content summarized on the page but you can see
             the current modules (including P&O content). These modules are also
             available on CD-ROM (Corel Presentations and Powerpoint formats).

             Edward Lemaire, PhD
             Research Associate
             The Rehabilitation Centre
             (613) 737-7350 x5592

________________________________________________________________________

European Law requires us to present users with understandable
            information. We (company: Team Ortopedteknik) have made our own
            information sheets for different types of devices. These are stored on
            the computer and printed when needed, so we don�t need to have hundreds
            in stock printed and ready. There are also brochures on using prosthetic
            and orthotic devices, published by the Swedish Handicap Institute. You
            can find them at

             <URL Redacted>

            but of course, these brochures are in Swedish. Also, have a look at your
            neighbours down under. A colleague of mine went to New Zeeland, and
            apparently they had good hand-out information, too.

            Best of luck

            Kjell-Ake Nilsson, CPO at Linkoping University Hospital, Sweden.

________________________________________________________________________

I will send you a copy
            of each of the Information Booklets for Lower-Limb Amputees that we
            provide prosthetists who give them to their patients to help them
            understand the process and use as a reference in their daily use of their
            prosthesis.
                    Sincerely,
                    A.Bennett Wilson, jr.
                     P.O. Box 380
                    Topping, VA 23169
                     USA

________________________________________________________________________

I am currently doing my masters degree in social work and am doing my
            practicum at GF Strong Rehab Centre, in their amputee program, in
            Vancouver, Canada. Part of my work there is to put together
            information/education materials for new amputees and their families. At
            present, in Vancouver, there is very little educational material
            available
            for people and they are, consequently, quite frustrated and unsure of the

            process - rehab, as well as life as an amputee - that lies ahead for
            them.

            So, I have begun locating materials that are currently available and I
            will
            list them below for you.
1. The Rehab Centre at the Royal Ottawa Hospital has The Terry Fox
            Mobile Clinic, and as part of that they have developed a range of
            info/educational materials, some of which are available on the internet.
            They also have a CD Rom available. Their web site is
            <www.rohcg.on.ca/mobile>

            2. The Amputee Coalition of America has a pretty good web site
            <www.amputee-coalition.org> as well as a National Limb Loss Infomation
            Centre and a bi-monthly publication called In Motion. They have also
            begun what looks to be an annual publication called First Step, which
            contains articles and information regarding issues and common questions
            raised by new amputees. You can find out about these through their web
            site.

            3. I have recently found out that the Gorge Road Hospital in Victoria,
            BC
            (Canada) has also put together a manual for new amputees called Passport

            to Independence. It sounds quite promising but I have not had any luck
            getting a copy of it.

Susan Massong
________________________________________________________________________


You might look up a chapter in the book, Henry Haimovici's Vascular
            Surgery, the last Chapter of that book titled, Lower Extremity
            Prosthetics . I provide a reprint of this chapter for new amputee
            patients. This might be of help to you.
            Yours in Health & Prosthetics
                            Jan Stokosa, C.P.


I am involved with a small research study on amputee
            information. We will be conducting a pilot study on assessing amputee
            information requirements later this year. I do have a list of
            citations of literature exploring the realm of amputees and their
            information requirements related to their prosthesis and the process of
            being fit with a prosthesis (which I can provide for you). Please let me
            know if you would like this.

            Chris Hovorka, MS, CPO

                          

Citation

Milburn, Lee, “Amputee education summaries,” Digital Resource Foundation for Orthotics and Prosthetics, accessed November 9, 2024, https://library.drfop.org/items/show/213605.