Ehlers Danlos syndrome
Markus Saufferer
Description
Collection
Title:
Ehlers Danlos syndrome
Creator:
Markus Saufferer
Date:
10/4/2013
Text:
Dear Colleagues,
I have an amputee patient who also suffers from Ehlers-Danlos syndrome. This is a connective tissue disorder (poor collagen formation) which results in ligamentous instability, fragile skin and in a tendency to develop very severe cystic structures (bursitis) around joints. This woman is a trans-tibial on one side and trans-metatarsal on the other. The challenges affecting prosthetic use are unstable joints which need to be stabilized and, in addition to the usual prosthetic interface pressures, result in a tendency for this extreme bursitis-like reaction. The result is, she has to regularly see her GP to drain the fluid. I am reaching out to see if anyone has worked with a similar case and found a particularly helpful approach, besides the obvious pressure and shear force reduction.
Markus Saufferer, B.Sc.(Kin), C.P.(c)
1145 Dufferin Cres.
Nanaimo, BC
250.591.1816
I have an amputee patient who also suffers from Ehlers-Danlos syndrome. This is a connective tissue disorder (poor collagen formation) which results in ligamentous instability, fragile skin and in a tendency to develop very severe cystic structures (bursitis) around joints. This woman is a trans-tibial on one side and trans-metatarsal on the other. The challenges affecting prosthetic use are unstable joints which need to be stabilized and, in addition to the usual prosthetic interface pressures, result in a tendency for this extreme bursitis-like reaction. The result is, she has to regularly see her GP to drain the fluid. I am reaching out to see if anyone has worked with a similar case and found a particularly helpful approach, besides the obvious pressure and shear force reduction.
Markus Saufferer, B.Sc.(Kin), C.P.(c)
1145 Dufferin Cres.
Nanaimo, BC
250.591.1816
Citation
Markus Saufferer, “Ehlers Danlos syndrome,” Digital Resource Foundation for Orthotics and Prosthetics, accessed November 2, 2024, https://library.drfop.org/items/show/235666.
