Re: muscular destrophy informations
Vikki A. Stefans
Description
Collection
Title:
Re: muscular destrophy informations
Creator:
Vikki A. Stefans
Date:
6/20/2001
Text:
Well, it is a lot to give in just one post, but bascially the thing is to
avoid overzealous correction of equinus, rarely if ever use AFOs, and when
quadriceps are too weak (less than antigravity) go to KAFOs. Hip flexion
contracture must be avoided strenuously if this is to work out at
all. Hamstring and ITB tightness do not help either. If heel cords are
released, have KAFOs ready for standing in the day after surgery.
I am really giving you what we know specifically about Duchenne's
here. For the 7-9 year old who is having trouble walking, sometimes a
non-hinged elastic knee sleeve that resists flexion a little, and/or a
sprained ankle brace will help (one study at UCLA some time ago noted it
cut falls in half.) Medically, steroid therapy does help preserve
strength longer and should be strongly considered.
TLSO for scoliosis is rarely if ever indicated; delaying surgery, which
will be needed if the curve is over 20-25 degrees, is not helpful because
it shodul be done while lungs are in good shape.
Check out the variuos MDA sites around the world- there are lots,with lots
of information. I would be glad to help with any more specific question
if I can. Best regards,
Vikki Stefans, pediatric physiatrist (rehab doc for kids), e-mail junkie,
working Mom of Sarah T. and Michael C., and wife of Henry My Travel Agent,
Arkansas Children's Hospital/ U of A for Medical Sciences, Little Rock, aka
<Email Address Redacted> ...and EVERY mom is a working mom! (OK, dads too.)
On Sat, 16 Jun 2001, sajid saeed wrote:
> Hello
>
> It will be highly appreciated if someone give me the informations about
> muscular destrophy and its treatment.
>
> ____________________________________________________________________
> Get free email and a permanent address at <URL Redacted>
>
>
avoid overzealous correction of equinus, rarely if ever use AFOs, and when
quadriceps are too weak (less than antigravity) go to KAFOs. Hip flexion
contracture must be avoided strenuously if this is to work out at
all. Hamstring and ITB tightness do not help either. If heel cords are
released, have KAFOs ready for standing in the day after surgery.
I am really giving you what we know specifically about Duchenne's
here. For the 7-9 year old who is having trouble walking, sometimes a
non-hinged elastic knee sleeve that resists flexion a little, and/or a
sprained ankle brace will help (one study at UCLA some time ago noted it
cut falls in half.) Medically, steroid therapy does help preserve
strength longer and should be strongly considered.
TLSO for scoliosis is rarely if ever indicated; delaying surgery, which
will be needed if the curve is over 20-25 degrees, is not helpful because
it shodul be done while lungs are in good shape.
Check out the variuos MDA sites around the world- there are lots,with lots
of information. I would be glad to help with any more specific question
if I can. Best regards,
Vikki Stefans, pediatric physiatrist (rehab doc for kids), e-mail junkie,
working Mom of Sarah T. and Michael C., and wife of Henry My Travel Agent,
Arkansas Children's Hospital/ U of A for Medical Sciences, Little Rock, aka
<Email Address Redacted> ...and EVERY mom is a working mom! (OK, dads too.)
On Sat, 16 Jun 2001, sajid saeed wrote:
> Hello
>
> It will be highly appreciated if someone give me the informations about
> muscular destrophy and its treatment.
>
> ____________________________________________________________________
> Get free email and a permanent address at <URL Redacted>
>
>
Citation
Vikki A. Stefans, “Re: muscular destrophy informations,” Digital Resource Foundation for Orthotics and Prosthetics, accessed November 26, 2024, https://library.drfop.org/items/show/216739.
