Osteogenesis responses
Gary A. Lamb
Description
Collection
Title:
Osteogenesis responses
Creator:
Gary A. Lamb
Date:
4/2/2001
Text:
Following is the original post and replies:
Dear List,
I have been asked to help a kindergarten aged child with OI. Soon to have a
femur rodded and spica cast for the requisite healing time. The request was
to find a mobility device that might allow some upright posture during class
times as well as recumbent and side lying positions. My imagination
envisions a tilt table type device on a wheelchair frame, possibly even
allowing self propulsion.
Is there a device of this type commercially available?
Thank you for your prompt replies, the surgery is scheduled for April 3.
Permobil has power chairs that allow complex positioning as well as tilt
forward and back and rotation in the medial lateral plane. Their chairs are
often appropriate for individuals with osteogenesis imperfecta. Tom Rolick
is the national sales rep and would be happy to help you out. his phone #
is 800 736-0925. His email address is <Email Address Redacted>
I believe there website is www.permobilusa.com
Good luck,
Charles E. Levy, MD
=====================================================
Gary, I don't think you are going to find one device to do both vertical and
horizontal positions.
If this is going to be for a short time, the simplest would be to use the
Filleaur standing fame. I also have a wooden A-frame prone stander that we
provide. Ours are made by a local wood shop and I can send you some digital
images of one if you like.
They do make standing wheelchairs but with the spica cast that won't work.
They
also make a self-propelled standing frame with large wheelchair type side
wheels
and coasters front and back for stability. Both of these are very expensive
and
may not be practical for short term use.
In the last year, we have received 5 or 6 similar requests for children with
OI and we have used the Fillauer Standing Frame. Although it may not be
mobile as in having wheels, it is easily carried to school and
easily set up in the classroom. It has straps which easily adjust over the
spika cast. In addition, it is also easily used after the child is wearing
the orthosis because of the adjustment flexibility with the straps. Since
weight-bearing assists in the healing process, we have found this to be
successful.
Gary Horton, CO, FAAOP
<Email Address Redacted>
================================================
<URL Redacted>
This is probably not just what you are looking for but take a look.
Edward J. Lydon, CO
=============================================
Your idea sounds pretty complicated to me. We have these carts called
castor carts here at the Bloorview MacMillan Centre where I work. Our
population is mostly spina bifida. They are low to the ground, I think they
have 3 wheels (can be propelled by the child), and some have a push handle
at the back. It has a back rest for sitting up, and they could recline in it
as well, if they are small enough. If you are interested, email me back and
I'll get details for you.
Naomi Matsui, CO(c)
Bloorview MacMillan Centre,
Toronto Ontario Canada
There is such a device! It is dalled the Standing Dani. It is made in the
area that I practice in (Flint Michigan) by a company called Davis Made Inc.
The Dani is a wonderful piece of equipment from an engineering standpoint
and
quality as well. <URL Redacted>
Gary Cheney passed your request for information on to me. I've never seen
such a device. All our kids in spica's were in a reclining wheelchair. You
might contact Don Katz CO at Scottish Rite in Dallas. Sorry
Gary your best bet is to talk to a PT who specializes in pediatrics. I have
seen such a beast in my travels but I could not tell you who makes it.
Just yesterday we had a similar case. We had no requirement for side lying
or recumbency in the same device, however.
We are using KAFO gutter splints for protection of the LEs and a Rifton
Dynamic Stander for upright mobility. This child had previously used HKAFOs,
but was unable to walk functional distances.
A child of kindergarten age would need either a model K11 (child's height of
25-32) or a model K13 (child' height of 30-40) Dynamic Stander. Rifton can
be contacted at 1-800-777-4244.
I hope this information is useful.
Sincerely,
Kevin Felton, CO, LO
Education Coordinator, Orthotics Department
Texas Scottish Rite Hospital for
Commercially available is a good question. We used to make Bat Mobiles at
Rancho. It was a wooden standing box type thing, with a table top shelf for
activities and a fanny pad to keep the kid from sitting down. It then had on
wheel chair wheels in the front, so that the child could wheel them
independently and smaller wheels in the back end. Most of the time the
carpentry dept at the hospital made them up. WHo knows where one would find
more info on them, but we used them alot.
Gary, I was in the Peds PT gym this morning and saw the standup wheeled
walker thing-a-ma-jig. This one was from a company called Davis Made
from Burton MI. Their phone number was 810-742-0587. Terry
==================================================
Gary, I co-wrote an article for JPO, winter 1990 (volume 2, number 2) called
Initial Standing of the Osteogenesis Patient that can clearly address some
of the duel purposes you address, and may be applicable to adaptation on a
wheelchair. If not, it is equally useful reading material if you should ever
suffer from insomnia.
Either way, enjoy, and good luck with your challenging situation.
Steve Baum C.O.
Palo Alto Hanger Prosthetics & Orthotics
Many thanks to all, and especially Paul Prusakowski. The JPO on line made
finding the above article a snap, never leaving my chair to dig through
eleven years of JPO!
Gary A. Lamb LPO, CO, FAAOP
C.O.P.E.
Comprehensive Orthotic-Prosthetic Enterprises
1742 Hickory St.
Abilene, TX. 79601
<Email Address Redacted>
Dear List,
I have been asked to help a kindergarten aged child with OI. Soon to have a
femur rodded and spica cast for the requisite healing time. The request was
to find a mobility device that might allow some upright posture during class
times as well as recumbent and side lying positions. My imagination
envisions a tilt table type device on a wheelchair frame, possibly even
allowing self propulsion.
Is there a device of this type commercially available?
Thank you for your prompt replies, the surgery is scheduled for April 3.
Permobil has power chairs that allow complex positioning as well as tilt
forward and back and rotation in the medial lateral plane. Their chairs are
often appropriate for individuals with osteogenesis imperfecta. Tom Rolick
is the national sales rep and would be happy to help you out. his phone #
is 800 736-0925. His email address is <Email Address Redacted>
I believe there website is www.permobilusa.com
Good luck,
Charles E. Levy, MD
=====================================================
Gary, I don't think you are going to find one device to do both vertical and
horizontal positions.
If this is going to be for a short time, the simplest would be to use the
Filleaur standing fame. I also have a wooden A-frame prone stander that we
provide. Ours are made by a local wood shop and I can send you some digital
images of one if you like.
They do make standing wheelchairs but with the spica cast that won't work.
They
also make a self-propelled standing frame with large wheelchair type side
wheels
and coasters front and back for stability. Both of these are very expensive
and
may not be practical for short term use.
In the last year, we have received 5 or 6 similar requests for children with
OI and we have used the Fillauer Standing Frame. Although it may not be
mobile as in having wheels, it is easily carried to school and
easily set up in the classroom. It has straps which easily adjust over the
spika cast. In addition, it is also easily used after the child is wearing
the orthosis because of the adjustment flexibility with the straps. Since
weight-bearing assists in the healing process, we have found this to be
successful.
Gary Horton, CO, FAAOP
<Email Address Redacted>
================================================
<URL Redacted>
This is probably not just what you are looking for but take a look.
Edward J. Lydon, CO
=============================================
Your idea sounds pretty complicated to me. We have these carts called
castor carts here at the Bloorview MacMillan Centre where I work. Our
population is mostly spina bifida. They are low to the ground, I think they
have 3 wheels (can be propelled by the child), and some have a push handle
at the back. It has a back rest for sitting up, and they could recline in it
as well, if they are small enough. If you are interested, email me back and
I'll get details for you.
Naomi Matsui, CO(c)
Bloorview MacMillan Centre,
Toronto Ontario Canada
There is such a device! It is dalled the Standing Dani. It is made in the
area that I practice in (Flint Michigan) by a company called Davis Made Inc.
The Dani is a wonderful piece of equipment from an engineering standpoint
and
quality as well. <URL Redacted>
Gary Cheney passed your request for information on to me. I've never seen
such a device. All our kids in spica's were in a reclining wheelchair. You
might contact Don Katz CO at Scottish Rite in Dallas. Sorry
Gary your best bet is to talk to a PT who specializes in pediatrics. I have
seen such a beast in my travels but I could not tell you who makes it.
Just yesterday we had a similar case. We had no requirement for side lying
or recumbency in the same device, however.
We are using KAFO gutter splints for protection of the LEs and a Rifton
Dynamic Stander for upright mobility. This child had previously used HKAFOs,
but was unable to walk functional distances.
A child of kindergarten age would need either a model K11 (child's height of
25-32) or a model K13 (child' height of 30-40) Dynamic Stander. Rifton can
be contacted at 1-800-777-4244.
I hope this information is useful.
Sincerely,
Kevin Felton, CO, LO
Education Coordinator, Orthotics Department
Texas Scottish Rite Hospital for
Commercially available is a good question. We used to make Bat Mobiles at
Rancho. It was a wooden standing box type thing, with a table top shelf for
activities and a fanny pad to keep the kid from sitting down. It then had on
wheel chair wheels in the front, so that the child could wheel them
independently and smaller wheels in the back end. Most of the time the
carpentry dept at the hospital made them up. WHo knows where one would find
more info on them, but we used them alot.
Gary, I was in the Peds PT gym this morning and saw the standup wheeled
walker thing-a-ma-jig. This one was from a company called Davis Made
from Burton MI. Their phone number was 810-742-0587. Terry
==================================================
Gary, I co-wrote an article for JPO, winter 1990 (volume 2, number 2) called
Initial Standing of the Osteogenesis Patient that can clearly address some
of the duel purposes you address, and may be applicable to adaptation on a
wheelchair. If not, it is equally useful reading material if you should ever
suffer from insomnia.
Either way, enjoy, and good luck with your challenging situation.
Steve Baum C.O.
Palo Alto Hanger Prosthetics & Orthotics
Many thanks to all, and especially Paul Prusakowski. The JPO on line made
finding the above article a snap, never leaving my chair to dig through
eleven years of JPO!
Gary A. Lamb LPO, CO, FAAOP
C.O.P.E.
Comprehensive Orthotic-Prosthetic Enterprises
1742 Hickory St.
Abilene, TX. 79601
<Email Address Redacted>
Citation
Gary A. Lamb, “Osteogenesis responses,” Digital Resource Foundation for Orthotics and Prosthetics, accessed December 27, 2024, https://library.drfop.org/items/show/216383.
